{"id":9485,"date":"2024-07-24T10:32:02","date_gmt":"2024-07-24T15:32:02","guid":{"rendered":"https:\/\/mydensitymatters.org\/introducing-my-story-matters-because-our-stories-matter-copy\/"},"modified":"2024-07-30T08:26:16","modified_gmt":"2024-07-30T13:26:16","slug":"the-legacy-of-gail-zeamer-gails-story-matters","status":"publish","type":"post","link":"https:\/\/mydensitymatters.org\/es\/the-legacy-of-gail-zeamer-gails-story-matters\/","title":{"rendered":"The Legacy of Gail Zeamer – Gail\u2019s Story Matters"},"content":{"rendered":"\n
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\n \"Gail \n <\/div>\n \n \n <\/div>\n <\/div>\n
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\n \n El legado de Gail Zeamer - La historia de Gail importa <\/span>\n\n \n \n July 24, 2024 <\/span>\n <\/h2>\n<\/div>\n\n\n
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By Ashley Inda<\/em><\/p>\n

Feroz, leal, amable, valiente, tenaz, dedicada, c\u00e1lida, divertida, apasionada, desinteresada, inteligente y cari\u00f1osa son s\u00f3lo algunas de las palabras que describen lo que Gail Zeamer era para todos los que llegaron a conocerla. Podr\u00eda decirse que no hay tiempo ni palabras suficientes para captar el impacto que Gail ha dejado en este mundo. Gail querr\u00eda que este post compartiera su historia con la esperanza de que salve m\u00e1s vidas para que su historia no se convierta en la tuya.\u00a0<\/p>\n

LA HISTORIA DE GAIL IMPORTA<\/strong><\/p>\n

Gail, que era diligente a la hora de hacerse sus mamograf\u00edas anuales, recibi\u00f3 un diagn\u00f3stico tard\u00edo de c\u00e1ncer de mama, estadio IIIC en 2016 a la edad de 47 a\u00f1os. Gail ten\u00eda mamas densas. A pesar de compartir su creciente preocupaci\u00f3n por sus nuevos bultos en sus revisiones anuales, no sab\u00eda que ten\u00eda mamas densas, cu\u00e1les eran los factores de riesgo inherentes a tener mamas densas ni sab\u00eda que las mamograf\u00edas pasan por alto hasta el 50% de los c\u00e1nceres de mama en mujeres con mamas densas. Cuando le diagnosticaron la enfermedad, pregunt\u00f3 a su m\u00e9dico por qu\u00e9 no le hab\u00edan hecho una ecograf\u00eda. \"que si todas las personas con 'bultos abultados' fueran enviadas a hacerse ecograf\u00edas, el sistema se ver\u00eda desbordado\".<\/em><\/p>\n

Eso no le sent\u00f3 bien a Gail, se pregunt\u00f3, \"\u00bfPor qu\u00e9 no hab\u00eda conocido mi densidad mamaria y todos los factores de riesgo? \u00bfPor qu\u00e9 mi m\u00e9dico no me hab\u00eda hablado de los factores de riesgo y no me hab\u00eda ordenado pruebas de detecci\u00f3n complementarias? \u00bfQu\u00e9 pasa con todas las dem\u00e1s personas que tienen mamas densas? \u00bfQui\u00e9n se lo va a decir? \u00bfC\u00f3mo lo van a saber?\"<\/em><\/p>\n

As\u00ed que mientras Gail se somet\u00eda a quimioterapia, radiaci\u00f3n, cirug\u00eda, etc. para tratar su c\u00e1ncer de mama, se puso en contacto con sus legisladores estatales y comparti\u00f3 su historia y sus preocupaciones sobre el diagn\u00f3stico tard\u00edo del c\u00e1ncer de mama en mujeres con senos densos. Despu\u00e9s de meses de abogar, escribir art\u00edculos de opini\u00f3n, hacer entrevistas de radio y televisi\u00f3n, proporcionar testimonio y reunirse cara a cara con los legisladores, el 3 de abril de 2018, el Proyecto de Ley 653 de Notificaci\u00f3n de Densidad Mamaria de Wisconsin fue aprobado y firmado como ley.<\/p>\n

Gail reanud\u00f3 su ajetreada vida como hija, hermana, esposa, madre, amiga y logopeda. Influy\u00f3 en la vida de ni\u00f1os y familias en su programa de reci\u00e9n nacidos a tres a\u00f1os. Ayud\u00f3 en la planificaci\u00f3n de festivales de oto\u00f1o de la iglesia y ense\u00f1\u00f3 educaci\u00f3n religiosa. Ella estaba all\u00ed para sus hijas Sophia y Claudia en todos los sentidos, vi\u00e9ndolas asistir a la universidad y perseguir sus sue\u00f1os. Disfrut\u00f3 de su tiempo con su marido, Steve, y trabaj\u00f3 en proyectos de remodelaci\u00f3n de casas. Paseaba a su perro Norman por el barrio. Hizo los viajes. Asist\u00eda a las celebraciones. Dedic\u00f3 su tiempo. Encarn\u00f3 la alegr\u00eda e hizo muchos m\u00e1s recuerdos.<\/p>\n

Pero no hab\u00eda terminado de ayudar a las mujeres con mamas densas. No hab\u00eda terminado de contar su historia, educar a las masas y defender a las mujeres con mamas densas que ni siquiera conoc\u00edan el peligro que pod\u00eda esconderse en su tejido denso. Con el poco tiempo libre que ten\u00eda, sigui\u00f3 participando en la Coalici\u00f3n contra el C\u00e1ncer de Mama de Wisconsin. Volvi\u00f3 a dirigirse a sus legisladores locales y les dijo, \"Esta ley de notificaci\u00f3n de la densidad mamaria es s\u00f3lo el principio. Ahora estamos diciendo a las mujeres con mamas densas que podr\u00edan necesitar un cribado suplementario, pero tienen que decidir '\u00bfpago los 1.000 d\u00f3lares de una resonancia magn\u00e9tica mamaria que puede o no encontrar c\u00e1ncer o le pongo ortodoncia a mi hija adolescente?'. Necesitamos que las compa\u00f1\u00edas de seguros cubran la mayor\u00eda, si no todos, los costes de los cribados suplementarios.\"<\/em> Y me escucharon.<\/p>\n

La primera versi\u00f3n del proyecto de ley, en la sesi\u00f3n de 2021-22 (Proyecto de Ley de la Asamblea 416 y Proyecto de Ley del Senado 413), inclu\u00eda un copago de 50 d\u00f3lares para la detecci\u00f3n adicional como una concesi\u00f3n a los grupos de presi\u00f3n de seguros. Gail estaba en ello de nuevo, trabajando incansablemente escribiendo art\u00edculos de opini\u00f3n, respondiendo a preguntas de entrevistas para peri\u00f3dicos, radio y televisi\u00f3n, y consiguiendo esas reuniones con los principales legisladores para obtener apoyo en los proyectos de ley.<\/p>\n

En medio de todo esto, empez\u00f3 a sufrir dolores de cabeza insoportables que acabaron llev\u00e1ndola a urgencias y confirmaron sus peores temores...el c\u00e1ncer hab\u00eda vuelto y se hab\u00eda extendido al cerebro.<\/em><\/strong><\/p>\n

A pesar de lo asustada, enfadada y frustrada que se sinti\u00f3 al enterarse de esto y volver a empezar todo el proceso de tratamiento... quimioterapia, radioterapia, cirug\u00eda, etc., no vacil\u00f3. Persever\u00f3 para conseguir que se aprobara esta ley. Cre\u00eda tanto en ello que lo quer\u00eda para sus hijas y para todos nosotros. Val\u00eda la pena si significaba que Claudia y Sophia estar\u00edan protegidas, estar\u00edan cubiertas.\u00a0<\/p>\n

\u00bfAdivinan qu\u00e9? Los proyectos de ley nunca salieron del comit\u00e9, ambos proyectos de ley murieron.<\/p>\n

Gail insisti\u00f3, volvi\u00f3 a dirigirse a sus legisladores locales y les dijo, \"No estamos haciendo lo suficiente. \u00a1Tenemos que cubrir el coste del cribado suplementario en mujeres con mamas densas para que puedan someterse a un cribado completo del c\u00e1ncer de mama!<\/em>\" \u00a1As\u00ed que para la sesi\u00f3n legislativa de 2023-24, se cre\u00f3 el Proyecto de Ley de la Asamblea 119 y el Proyecto de Ley del Senado 121 con la versi\u00f3n original que cubre a\u00fan m\u00e1s modalidades de detecci\u00f3n suplementarias y SIN responsabilidades de COMPARTICI\u00d3N DE COSTOS de las personas con senos densos! Proyectos de ley de ensue\u00f1o con el l\u00edder m\u00e1s impulsado y decidido Gail a la vanguardia.\u00a0<\/p>\n

A medida que el c\u00e1ncer se extend\u00eda a su cerebro, cada vez le resultaba m\u00e1s dif\u00edcil encadenar pensamientos y recordar informaci\u00f3n, \u00a1pero NUNCA SE RINDIO! Continu\u00f3 con sus tratamientos y sigui\u00f3 LUCHANDO POR LAS PERSONAS CON SENO DENOSTICADO. Dedic\u00f3 a la causa gran parte del valioso tiempo que le quedaba. Cre\u00eda que era lo correcto.\u00a0<\/p>\n

Lamentablemente, a pesar de contar con apoyo bipartidista y ser una opci\u00f3n obvia para las personas con senos densos, el proyecto de ley 119 de la Asamblea y el proyecto de ley 121 del Senado nunca salieron del comit\u00e9, nunca llegaron a la asamblea o al senado para una votaci\u00f3n oficial. AMBOS PROYECTOS DE LEY MURIERON ... DE NUEVO.<\/p>\n

Incluso despu\u00e9s de la reciente ronda de proyectos de ley fracasados, Gail segu\u00eda elaborando estrategias para los siguientes pasos. Anim\u00f3 a los miembros de nuestro comit\u00e9 pol\u00edtico, que se sent\u00edan derrotados por la incapacidad de nuestro gobierno para hacer lo correcto. Su empuje nos inspir\u00f3 a todos para reagruparnos y volver a intentarlo.\u00a0<\/p>\n

Desafortunadamente, en medio de todo esto su c\u00e1ncer continu\u00f3 extendi\u00e9ndose causando m\u00e1s molestias y ataques. El 2 de junio de 2024 Gail falleci\u00f3 a la edad de 56 a\u00f1os y con ella se apag\u00f3 una luz brillante que la guiaba y la conduc\u00eda.\u00a0<\/p>\n

S\u00f3lo se atenu\u00f3 porque Gail nos proporcion\u00f3 mapas y herramientas para navegar hacia delante y para unirnos y compartir nuestra luz para sacar esto adelante.\u00a0<\/p>\n

Esa es la magia de Gail, sigue presidiendo todo el pasado, presente y futuro de este movimiento.<\/p>\n

Gail ha dejado un legado cuyo regalo seguir\u00e1 dando durante muchas generaciones, ya que muchos de los que formamos parte de la Coalici\u00f3n contra el C\u00e1ncer de Wisconsin nos unimos al movimiento tras leer uno de sus art\u00edculos o ver su entrevista en las noticias de televisi\u00f3n, y nos mantuvimos fieles a su apoyo inquebrantable. Ha salvado innumerables vidas con su mensaje y su misi\u00f3n, sabiendo desinteresadamente que era demasiado tarde para que la legislaci\u00f3n repercutiera en su resultado.\u00a0<\/p>\n

Sigamos iluminando el camino de las personas con mamas densas y honremos el amor y la dedicaci\u00f3n que Gail demostr\u00f3 a este movimiento, y hagamos lo siguiente:<\/p>\n

    \n
  1. CONOCE TU DENSIDAD MAMARIA<\/li>\n
  2. Si tiene MAMAS DENOSTRADAS es absolutamente necesario que se someta a un cribado complementario para un cribado completo del c\u00e1ncer de mama.<\/li>\n
  3. P\u00f3ngase en contacto con sus legisladores locales y h\u00e1gales saber que est\u00e1 a favor de que los seguros cubran gratuitamente las pruebas complementarias de detecci\u00f3n y diagn\u00f3stico por imagen para las personas con mamas densas.<\/li>\n
  4. AGRADEZCA A GAIL TODO SU TIEMPO Y COMPROMISO CON ESTE MOVIMIENTO Y COMPARTA LA INFORMACI\u00d3N QUE HA APRENDIDO SOBRE LA DENSIDAD MAMARIA CON SUS SERES QUERIDOS Y CON OTRAS PERSONAS QUE PUEDAN BENEFICIARSE.<\/li>\n<\/ol>\n

    En resumen, gracias Gail por tu amor y tu luz. Tu legado sigue vivo en todos nosotros.\u00a0<\/p>\n

    LA HISTORIA DE GAIL IMPORTA <\/strong><\/p> <\/div>\n<\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n","protected":false},"excerpt":{"rendered":"

    By Ashley Inda Fierce, loyal, kind, courageous, tenacious, dedicated, warm, funny, passionate, selfless, smart and loving are just a few words that described what Gail Zeamer was to all who […]<\/p>\n","protected":false},"author":10,"featured_media":9498,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"footnotes":""},"categories":[46],"tags":[],"class_list":["post-9485","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-breast-cancer","has-post-title","has-post-date","has-post-category","has-post-tag","has-post-comment","has-post-author",""],"yoast_head":"\nThe Legacy of Gail Zeamer - Gail\u2019s Story Matters - My Density Matters<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/mydensitymatters.org\/es\/the-legacy-of-gail-zeamer-gails-story-matters\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Legacy of Gail Zeamer - 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Gail\u2019s Story Matters<br\/>July 24, 2024<\/h2>\n<p><em>By Ashley Inda<\/em><\/p> <p>Fierce, loyal, kind, courageous, tenacious, dedicated, warm, funny, passionate, selfless, smart and loving are just a few words that described what Gail Zeamer was to all who came to know her. Arguably there is not enough time and words that captures the impact Gail has left on this world.\u00a0 Gail would want this post to share her story in hopes that it would save more lives so that her story doesn\u2019t become yours.\u00a0<\/p> <p><strong>GAIL\u2019S STORY MATTERS<\/strong><\/p> <p>Gail, who was diligent about getting her yearly mammograms, received a delayed diagnosis of breast cancer, Stage IIIC in 2016 at the age of 47. Gail had dense breasts. Despite sharing her growing concerns about her new lumps at her yearly check ups, she did not know she had dense breasts, what the inherent risk factors of having dense breasts were nor did she know that mammograms miss up to 50% of breast cancers in women with dense breasts.\u00a0 After she was diagnosed, she asked her doctor why she wasn\u2019t offered an ultrasound, they stated <em>\u201cthat if everyone with \u2018lumpy bumpies\u2019 were sent for ultrasounds, the system would be overwhelmed.\u201d<\/em><\/p> <p>That didn\u2019t sit well with Gail, she wondered,<em> \u201cWhy hadn\u2019t I known about my breast density and all the risk factors? \u201cWhy hadn\u2019t my doctor talked to me about the risk factors and ordered supplemental screenings?\u201d \u201cWhat about all the other individuals who have dense breasts? Who is going to tell them? How will they know?\u201d<\/em><\/p> <p>So while Gail was undergoing chemotherapy, radiation, surgery, etc. to treat her breast cancer, she reached out to her state legislators and shared her story and her concerns about delayed diagnosis of breast cancer in women with dense breasts. After months of advocating, writing op-eds, doing radio and television interviews, providing testimony and meeting face to face with legislators, on April 3rd, 2018, the Wisconsin Breast Density Notification Bill 653 was passed and signed into law.<\/p> <p>Gail resumed her busy life as a daughter, sister, wife, mother, friend and speech pathologist.\u00a0 She impacted the lives of children and families in her Birth-to-Three Program. She helped out at church planning fall festivals, and taught religious education. She was there for her daughters Sophia and Claudia in every way, watching them attend college and pursue their dreams. She enjoyed her time with her husband, Steve, and worked on home remodel projects.\u00a0 She took her dog Norman on walks around her neighborhood. She took the trips. She attended the celebrations. She gave her time. She embodied joy and made many more memories.<\/p> <p>But she wasn\u2019t done helping out those with dense breasts. She wasn\u2019t done telling her story, educating the masses, and advocating for those with dense breasts who didn\u2019t even know the danger that could be hiding within their dense tissue. With the little free time she had, she continued her involvement in the Wisconsin Breast Cancer Coalition. She again went to her local legislators and said, <em>\u201cHey, this breast density notification law is just the beginning. Now we are telling women with dense breasts that they might need supplemental screening but they are having to decide \u2018do I pay the $1,000 for a breast MRI that may or may not find cancer or put braces on my teenager?\u2019 We need insurance companies to cover most if not all of the costs of supplemental screenings.\u201d<\/em> AND they listened!<\/p> <p>The first version of the bill, in the 2021-22 session (Assembly Bill 416 and Senate Bill 413), included a $50 co-pay for additional screening as a concession to insurance lobbyists. Gail was at it again, working tirelessly writing op-eds, answering interview questions for newspapers, radio and television, and getting those meetings in with core legislators to gain support on the bills.<\/p> <p>In the midst of all this she started getting excruciating headaches that eventually landed her in the emergency room and confirmed her worst fears\u2026<strong><em>the cancer was back and it had spread to her brain.<\/em><\/strong><\/p> <p>As scared, angry and frustrated as she was to learn this and start the whole treatment process over again\u2026chemotherapy, radiation, surgery, etc. she did not waver. She persevered to get this piece of legislation passed. She believed in it that much, she wanted this for her daughters for all of us. It was worth it if it meant Claudia and Sophia would be protected, would be covered.\u00a0<\/p> <p>Guess what? The bills never made it out of committee, both bills died.<\/p> <p>Gail persisted, again she reached out to her local legislators and said<em>, \u201cWe are not doing enough. We need to cover the cost of supplemental screening in women with dense breasts so they can have a complete breast cancer screening!<\/em>\u201d So for the 2023-24 legislative session, Assembly Bill 119 and Senate Bill 121 was created with the original version covering even more additional supplemental screening modalities and NO COST SHARING responsibilities from individuals with dense breasts! Dream bills with the most driven and determined leader Gail at the forefront.\u00a0<\/p> <p>As the cancer spread to her brain, stringing together thoughts and recalling information became increasingly difficult, but she NEVER GAVE UP! She continued her treatments and she continued to FIGHT FOR INDIVIDUALS WITH DENSE BREASTS. She gave up so much of what precious time she had left to the cause. She believed it was the right thing to do.\u00a0<\/p> <p>Sadly, despite having bipartisan support and it being an obvious choice for individuals with dense breasts, Assembly Bill 119 and Senate Bill 121 never made it out of committee, never made it to the assembly or senate floor for an official vote. BOTH BILLS DIED\u2026AGAIN.<\/p> <p>Even after the recent round of failed bills, Gail was still strategizing what the next moves should be. Invigorating our policy committee members who were feeling defeated at the failure of our government to do the right thing. Her drive inspired all of us to regroup and try again.\u00a0<\/p> <p>Unfortunately, in the midst of all of this her cancer continued to spread causing more discomfort and seizures. On June 2nd, 2024 Gail passed away at the age of 56 and with it a bright, guiding, driving light was dimmed.\u00a0<\/p> <p>Only dimmed because Gail provided us with maps and tools to navigate this forward and to band together and share our light to see this through.\u00a0<\/p> <p>That\u2019s the magic of Gail, she still presides in all of the past, present and future of this movement.<\/p> <p>Gail has left a legacy whose gift will keep on giving for many generations with many of us in the Wisconsin Cancer Coalition joining the movement after reading one of her articles or seeing her news interview on television and we stayed true to her unwavering support. She has saved countless lives with her message and mission, selflessly knowing that it was too late to have the legislation impact her outcome.\u00a0<\/p> <p>Let's continue to light the way for individuals with dense breasts and honor the love and dedication that Gail showed to this movement, and do the following:<\/p> <ol> <li>KNOW YOUR BREAST DENSITY!<\/li> <li>If you have DENSE BREASTS you absolutely need to have supplemental screening for a complete breast cancer screening.<\/li> <li>Reach out to your local legislators and let them know that you support cost free insurance coverage of supplemental screening and imaging for individuals with dense breasts.<\/li> <li>THANK GAIL FOR ALL HER TIME AND COMMITMENT TO THIS MOVEMENT AND SHARE THE INFORMATION YOU LEARNED ABOUT BREAST DENSITY WITH THOSE YOU LOVE AND OTHERS WHO WOULD BENEFIT.<\/li> <\/ol> <p>In summary, thank you Gail for your love and light. Your legacy lives on in all of us.\u00a0<\/p> <p><strong>GAIL\u2019S STORY MATTERS <\/strong><\/p>","_links":{"self":[{"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/posts\/9485","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/users\/10"}],"replies":[{"embeddable":true,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/comments?post=9485"}],"version-history":[{"count":17,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/posts\/9485\/revisions"}],"predecessor-version":[{"id":9544,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/posts\/9485\/revisions\/9544"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/media\/9498"}],"wp:attachment":[{"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/media?parent=9485"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/categories?post=9485"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mydensitymatters.org\/es\/wp-json\/wp\/v2\/tags?post=9485"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}